PA’s annual Hepatitis Drug Guide is a handy resource for reliable treatment information and what you should know about HIV/HCV co-infection—in print and online at positivelyaware.com—but here are other useful resources, too
Hepatitis B
Hepatitis B Foundation
Provides a wealth of information on HBV in all areas from awareness to prevention to treatment. They offer educational resources via fact sheets, videos, podcasts, and blog posts. They also provide an excellent section on liver cancer via their Liver Cancer Connect program. Information is offered in a variety of languages.
Hep B United
A national coalition devoted to reducing the health disparities associated with hepatitis B by increasing awareness, screening, vaccination, and linkage to care for high-risk communities across the U.S. This is an excellent site if you want to keep up with HBV news and updates, as well as policy and advocacy.
Asian Liver Center, Stanford University
A world-renowned program that works to eliminate the stigma of HBV, as well as prevent transmission and reduce deaths from liver disease in Asian Americans in the U.S. and among Asians throughout the world. An excellent resource for patients and providers.
American Liver Foundation
Provides information and fact sheets on a wide range of liver diseases, including HBV and HCV. They also have an excellent program for caregivers of people with liver disease: CaringBridge. They have local chapters throughout the U.S. and often have educational and awareness events. Check their website for activities and events in your area.
HBV Advocate
The hepatitis B page of the HCV Advocate, this site has fact sheets and a blog on a wide array of HBV topics and information. An excellent source of scientific and conference data, too.
Know Hepatitis B
cdc.gov/knowhepatitisB/index.htm
An education and social campaign, their materials include fact sheets, posters, videos, and more on HBV in a wide variety of languages. There is also an excellent resource section for medical providers.
Hepatitis C
HELP-4-HEP
877-435-7443 toll-free
National hepatitis C support line staffed by peer counselors. Health education, resources, referrals for testing and treatment, and emotional support. Monday–Friday, 9 am–7pm ET.
The HCV Advocate
Offers a wealth of HCV informational fact sheets and booklets. Monthly newsletter, The HCV Advocate.
HEP Mag
An excellent resource for hepatitis B and C news and information. Their blog series, written by people with HCV as well as other HCV advocates, is a great source of practical information and inspiration.
The Hepatitis C Mentor and Support Group, Inc.
An excellent resource for HCV support groups throughout
New York, with links to many other resources for people living with HCV.
Hep C Association
An excellent source for HCV news and information.
Liver Health Connection
Array of services for people throughout Colorado. Excellent site for news and information.
Project Inform
Advocates for issues related to HIV, HCV and health care access. Up-to-date information on HIV and HCV care and health care reform.
Treatment Action Group
National advocacy, research, and policy think tank on HIV, hepatitis C and tuberculosis. Fact sheets, policy papers and annual Pipeline Report.
National AIDS Treatment Advocacy Project
Easily the best website for scientific results from HIV and HCV conferences and academic articles.
Hepatitis C.net
Provides education, tools and resources to help you manage your disease. Articles are written by people living with HCV (including some who’ve been cured), patient advocates, and medical providers.
Caring Ambassadors
An education and advocacy organization whose website offers a wealth information for people living with HCV. Their “Hepatitis C Choices” book offers a comprehensive overview of all aspects of the disease.
AIDSVu.org, whose interactive website offers a visualization of HIV statistics from national to local levels, also offers a similar site for a state-by-state view of hepatitis across the U.S. HepVu.org provides basic information about hepatitis A, B, and C, along with a list of resources.