Lasting health equity requires shared decision-making, community expertise and a shift in who holds power
.FIRST PERSON. COMMENTARY
Healthcare has spent decades defining and measuring social determinants of health. The data are extensive. The disparities are well documented. The outcomes, in many cases, are predictable. Yet despite this, progress remains inconsistent and inequities persist across communities.
At this point, the issue is no longer awareness. It is design.
The systems responsible for delivering care are producing exactly what they were built to produce. If outcomes continue to fall short, it is not because the problem is misunderstood. It is because the systems themselves have not fundamentally changed.
Even the language reflects this challenge. The term social determinants of health has become widely accepted, but it can suggest that outcomes are fixed or inevitable—they have been determined. A more accurate framing is social influences of health. This shift matters because it acknowledges that individuals are navigating systems, not failing within them. It places accountability where it belongs—on policies, structures and decisions. Most importantly, it reinforces that these conditions are not permanent. They can be changed.
Understanding this becomes even more critical when health is viewed through a syndemic lens.
People are not experiencing health challenges in isolation. They are managing multiple chronic conditions while navigating mental health challenges, stigma, aging, financial instability and social isolation. These factors do not exist independently. They interact, reinforce one another and create compounded risk over time.
This is the reality many individuals face, yet healthcare systems remain largely structured to address problems one at a time. Clinical care is separated from social care. Behavioral health is siloed from physical health. Community resources are treated as external rather than essential. The result is fragmentation that forces individuals to navigate complexity on their own.
This is not just inefficient. It is ineffective.
A syndemic, integrated approach is no longer a progressive concept. It is a necessary one.Addressing overlapping clinical and social needs simultaneously requires intentional alignment across care delivery, community partnerships and data. It means designing systems that reflect the full context of people’s lives rather than simplified versions of health.
At the same time, healthcare systems must confront their own structural limitations.
Many organizations are not resourced to deliver comprehensive, coordinated care. Limited time, fragmented services and funding constraints create gaps that directly impact patients. These gaps do not exist in isolation. They become social influences of health themselves, shaping access, engagement and outcomes.
Recognizing this is not an admission of failure. It is a necessary step toward designing better systems.
Progress often emerges when healthcare moves beyond its own boundaries.
The most effective solutions are built through partnerships with organizations that understand how health intersects with housing, food access, transportation, employment and stability. Healthcare systems bring clinical expertise. Community organizations bring trust, proximity and lived understanding of the challenges people face every day.
When these partnerships are aligned around shared outcomes rather than organizational silos, care becomes more coordinated, engagement improves and gaps close faster.
But alignment must extend beyond organizations to the communities themselves.
For too long, communities have been positioned as recipients of care rather than drivers of change. This approach overlooks the reality that individuals and families are experts on their own experiences. It also limits the effectiveness of interventions that are designed without their input.
True progress requires a shift in power.
Communities must be engaged early, not as an afterthought. Lived experience must be compensated, supported and treated as expertise. Success must be defined not only by clinical outcomes, but by what stability, dignity and well-being look like in real life.
Without this shift, systems risk continuing to solve the wrong problems.
The same misalignment can be seen across many public systems.
Efforts to address social influences of health often operate in parallel rather than in coordination. Housing, transportation, education and healthcare are treated as separate domains, each with its own funding streams, metrics and priorities. Programs are frequently designed around compliance and reporting requirements rather than long-term impact.
The result is a cycle where individuals move through systems without ever achieving stability.
Real alignment requires a different approach. Funding must support collaboration across sectors. Data must be shared to enable coordinated action. Success must be measured by whether individuals experience improved stability, reduced utilization and less reliance on systems over time.
This is the difference between managing need and reducing it.
The role of the private sector is equally critical.
Employment is one of the most powerful social influences of health. Income stability, wages and working conditions directly affect whether individuals can maintain housing, access care and sustain their well-being. When people are working full-time and yet are still unable to meet basic needs, the consequences extend far beyond financial strain.
Burnout increases. Health outcomes decline. Workforce shortages grow.
This dynamic is especially visible within healthcare itself, where workforce instability directly impacts care delivery. Employers who invest in stability are not only supporting their workforce. They are improving workforce retention, strengthening care delivery and reducing long term system strain. Health advocates know that when a case manager is lost, people fall out of care.
Within care delivery, there is also a need to rethink how needs are identified and addressed.
Screening for social influences of health must be integrated into routine care in ways that are simple, respectful and actionable. Identifying need is only the first step. Without clear pathways and trusted partners to respond, it becomes another administrative task rather than a meaningful intervention.
This work must be shared across care teams.
Navigators, community health workers and thoughtfully designed technology can help identify patterns, prioritize needs and guide next steps. When used effectively, these tools enhance human connection rather than replace it.
Yet even with these advancements, one fundamental issue remains: power.
Healthcare systems often emphasize inclusion while maintaining decision-making structures that exclude meaningful community influence. Input is gathered, but authority is not shared. Perspectives are heard, but they do not shape outcomes.
This is not inclusion. It is preservation of the status quo.
If systems are serious about improving health outcomes, they must be equally serious about redistributing influence.
Family advocates and individuals with lived experience must have meaningful roles within governance structures, including boards of trustees and executive leadership. Their involvement must be early, consistent and supported. Their contributions must shape priorities, not simply validate decisions that have already been made.
Lived experience is expertise.
When it is valued, decision-making becomes more grounded and responsive. When it is excluded, systems continue to overlook the realities they are meant to address.
Without lived experience influencing decisions at the highest levels, healthcare systems will continue to miss what matters most.
And there is another reality healthcare must confront.
Healthcare is also a business.
Too often, advancing equity is framed as separate from financial performance, as if systems must choose between mission and margin. In reality, the current model is one of the most expensive ways to operate.
Fragmented care drives up the cost of care. Reactive interventions increase avoidable utilization. Unmanaged chronic conditions lead to repeated hospitalizations. Workforce burnout and turnover strain operations and increase recruitment costs. Systems are already absorbing these financial consequences every day.
Inequity is not just a moral issue. It is a cost driver.
A syndemic, integrated approach is not an added expense. It is a more efficient model. When care is coordinated, when social influences are addressed early and when communities remain engaged, utilization stabilizes, outcomes improve and workforce strain decreases.
This is the foundation of value-based care.
Better alignment leads to lower total cost of care, improved patient outcomes and stronger system performance. Addressing root causes is not just better care. It is better business.
If healthcare is serious about sustainability, then redesign is not optional.
The question is not whether systems can afford to change. It is whether they can afford not to.
Looking ahead, the urgency of this work will only increase.
Climate change, aging populations and evolving technologies will intensify pressure on individuals and systems alike. The communities already facing the greatest challenges will experience these impacts first and most deeply.
The path forward is not unclear. It is simply under-implemented.
Healthcare and social systems must be redesigned around stability, not crisis.
Health outcomes will not improve through isolated interventions layered onto existing structures. They will improve when systems are fundamentally redesigned to reflect the complexity of people’s lives and when those most affected have real authority in shaping those systems.
The problem has been clearly defined.
If healthcare is not willing to share power, it should stop claiming it wants better outcomes.
Von Biggs is an HIV health equity advocate focused on advancing equitable healthcare systems through community-driven solutions, lived experience and syndemic approaches to care. His work centers on challenging structural inequities and driving system-level change across healthcare and public health.
